National and International Organizations & Web Resources

321 eLearning provides affordable and accessible webinars about a variety of topics specifically designed for parents, educators, and researchers within the global Down syndrome community.

ABLE National Resource Center (ANRC) is a collaborative whose supporters share the goal of accelerating the design and availability of ABLE accounts for the benefit of individuals with disabilities and their families. We bring together the investment, support and resources of the country’s largest and most influential national disability organizations..

Academic Therapy publishes tests and assessment materials, parent/teacher resources, and visual-perceptual aids. They serve the needs of educators, speech and language pathologists, psychologists, testing personnel, reading specialists, and all professionals working with students with special needs.

Achievement Products Achievement Products offers hundreds of top quality therapy, exercise and special education products from walkers and standers to therapy balls, feeder seats, rolls and wedges to help children achieve their best.

Add-A-Bands Add-A-Bands were created to enhance the development of children who are delayed in motor skills by keeping their legs in position for more effective movement.

American Camping Association Has a database that houses over 2000 accredited camps. You can specifically search for camps that accept children with Down syndrome.

Annandale Village Annandale Village is a residential campus with cottages and apartments for individuals with disabilities. It also offers paid vocational training and job placement, daily classes, case management and health services, and a nursing home.

Apraxia-Kids Apraxia-KidsSM Internet Resources – your online source for reliable and comprehensive information about Childhood Apraxia of Speech* for families, professionals and all those who care about a child with apraxia.

Arc Legislative Action Center The National Arc has an excellent resource to help families keep up to date on legislative issues affecting children and adults with disabilities. The Legislative Action Center will provide you with a guide to your federal, state and local elective officials. It also has a list of Action alerts, important issues, recent votes, current legislation, and more. Let’s make an effort to make a difference!

Assistive Technology Training Online Project (ATTO) The Assistive Technology Training Online Project (ATTO) provides information on AT applications that help students with disabilities learn in elementary classrooms.

Assistivetech.net A resource for assistive technology (AT) and a link to a wide variety of AT and disability-related information.

Association of University Centers on Disabilities (AUCD) The Association of University Centers on Disabilities (AUCD) is a network of interdisciplinary Centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.

Band of Angels Press Band of Angels Press celebrates persons with Down syndrome. Our vision is simply to present current and positive information on Down syndrome to increase acceptance for people with differences. They offer essay, books, calendars and cards for sale.

Barber Center The Barber Center serves over 2,600 individuals and their families with services ranging from early intervention, an inclusive preschool, an Autism Center of Excellence, an Approved Private School, job training and placement, residential group homes and supported living programs, in-home services, specialized therapies and a retirement center.

Beckman Oral Motor Therapy Beckman Oral Motor Therapy addresses issues concerning Oral Motor Patterns and Oral Motor Impairments.

Best Buddies The mission of Best Buddies is to enhance the lives of people with intellectual and developmental disabilities by providing opportunities for one-to-one friendships and integrated employment.

Beyond Play Beyond Play focuses on young children with special needs. Their goal is to bring you a wide selection of products that are all appropriate for Early Intervention. Their catalog and web site are for professionals of all disciplines, as well as for parents and caregivers.

Bridges4Kids Bridges4Kids is a community of equal partners coming together to provide a circle of support for ALL children from birth to adult life with a special focus on those who have disabilities, special needs, or who are at-risk.

Child Development Media Child Development Media offers a collection of materials for issues on early intervention, special needs, parent education and more.

College Resources for Students with Disabilities – Affordable Colleges Online is committed to providing current and prospective students with the necessary information and resources to succeed in college and after graduation. This website includes detailed information that would benefit students with disabilities.

College Support for Students with Disabilities  In addition to campus support, students with disabilities are protected under federal, state and local laws, which prohibit discrimination and ensure equal access to the same quality and level of education. This guide provides an overview of the legal rights of students with disabilities, as well as advice and next steps when considering which college to attend. It also includes a list of links to web applications and software programs that aid students with various disabilities.

Council for Exceptional Children (CEC) The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically underserved individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.

Council for Jews with Special Needs The Council for Jews with Special Needs is a non-profit human resources agency, composed of concerned individuals working together to ensure that all Jews have the opportunity to fully participate in the richness of Jewish religious, cultural, and social life.

Council of Parent Attorneys and Advocates The Council of Parent Attorneys and Advocates is an independent, nonprofit, tax-exempt organization of attorneys, advocates and parents established to improve the quality and quantity of legal assistance for parents of children with disabilities.

Dental Care Guidance for Caregivers of Patients with Down Syndrome Good information about dental care and how to make the appointment easier for your loved one.

DisABILITIESBOOKS DisABILITIESBOOKS serves the community of individuals with disabilities and their families and friends as well as the professionals who provide services to the disability community.

Disability is Natural Disability is Natural. Like gender and ethnicity, it’s simply one of many characteristics of being human, and it’s time to share the good news with others!

Disability Resources, Inc. Disability Resources, Inc. is a nonprofit 501(c)(3) organization established to promote and improve awareness, availability and accessibility of information that can help people with disabilities live, learn, love, work and play independently.

Do2Learn Do2Learn has activities to promote independence in individuals with special learning needs. Great site!

Dolphin Human Therapy (DHT) Dolphin Human Therapy (DHT), Inc., is a private company which provides a full time, individualized dolphin-assisted rehabilitation program for special needs children and adults.

Down Syndrome Educational Trust The Down Syndrome Educational Trust is a charity, based in the United Kingdom, that works to advance the development and education of individuals with Down syndrome. Great resources on reading, writing, speech development and more.

Down Syndrome Health Care Guidelines This article is a must-have for all parents and the medical professionals who have patients with Down syndrome.

Down Syndrome International Swimming Organisation The goal of the Down Syndrome International Swimming Organisation is to to see swimmers with Down’s syndrome participating in the Paralympic Games in the future as a separate category.

Down Syndrome Quarterly Down Syndrome Quarterly is an interdisciplinary journal devoted to advancing the state of knowledge on Down syndrome and will cover all areas of medical, behavioral, and social scientific research. It is published in March, June, September, and December and is distributed by subscription to individuals, organizations, and libraries.

Down Syndrome Research Foundation & Resource Center Located in Vancouver, BC, the Down Syndrome Research Foundation & Resource Center is dedicated to improving life for people with Down syndrome through research, education and services.

Down Syndrome Research Online Advocacy Group The Down Syndrome Research Online Advocacy Group (DSResearch, Inc.) is a non-profit scientific and educational effort aimed at increasing public understanding and support for clinical and biomedical research into Down syndrome.

Down’s Heart Group On this site you will find information about heart defects, tests and procedures, and other topics of interest, as well as details of the support and information available from the Down’s Heart Group.

DynaVox Systems DynaVox Systems have products that provide those with speech disabilities the communication tools they need to express themselves more fully.

e-Buddies e-Buddies creates e-mail friendships between people with and without intellectual and developmental disabilities.

Exceptional Parent Exceptional Parent provides information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.

Facilitated Communication Institute The Facilitated Communication Institute provides research, training and public education on FC, which is an alternative means of expression for people who cannot speak or whose speech is highly limited (echoed, limited to one or a few word utterances) and who cannot point reliably.

Family & Advocates Partnership in Education (FAPE) The Family & Advocates Partnership in Education (FAPE) website is a new project which aims to inform and educate families and advocates about the Individuals with Disabilities Education Act of 1997 (IDEA 97).

Fat Wheels The FatWheels training wheels are much more stable, durable, and offer much less rolling resistance than traditional training wheels, regardless of the riding surface. FatWheels products have also enabled many kids with special needs to ride a bike!

Fathers Network The Fathers Network provides up-to-date information and resources for fathers, family members, and care providers.

Flash! Pro2 CD-ROM The Flash! Pro2 CD-ROM contains the most comprehensive set of over 8500 color photo images in 65 categories that you can easily select, preview and print as flash cards to teach speech and language.

Fuller Ford For adapted vehicles for specialized transportation and all your transportaion needs.
900 W Eighth St. Cincinnati, Ohio 45203
John Allen. Sales Manager.
Phone: (513) 352-5800 Ext. 50

Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical care, Education and Advocacy. Formally established in 2009, the Foundation’s primary focus is to support the Linda Crnic Institute for Down Syndrome, the first academic home in the United States committed solely to research and medical care for people with Down syndrome. Since Down syndrome is the least-funded genetic condition in the United States, fundraising and government advocacy to correct the alarming disparity of national funding for people with Down syndrome is a major goal.

Grandparent to Grandparent Grandparent to Grandparent. This list is for grandparents of children with special needs. Recognizing that grandparents have the potential to be a great support to families and that grandparents have their own questions and concerns, this is a place to find support and information from other grandparents.

Great Lakes ADA & IT Center The Great Lakes ADA & IT Center provides technical assistance and training to businesses and people with disabilities regarding the Americans with Disabilities Act of 1990 (ADA). It serves the states of Illinois, Indiana, Ohio, Michigan, Minnesota and Wisconsin.

Greenhouse Publications CREATORS AND PUBLISHERS OF INTERACTIVE EDUCATIONAL PRODUCTS – For Preschool, Kindergarten, Special Education, Early Elementary, Speech Therapists, Educational Therapists, Inclusion Specialists, English as a Second Language, Resource Specialists, Occupational Therapists, Parents.

Guided Tour, Inc. Travel for persons with developmental and physical challenges.

HandSpeak HandSpeak is an online sign language website.

Handwriting Without Tears Handwriting Without Tears (HWT) is the easy way to teach pre-printing, printing and cursive! It was developed by Jan Z. Olsen, OTR, an occupational therapist and handwriting specialist.

Hitchcock Shoes for Men Hitchcock Shoes is a direct merchant specializing in men’s shoes in widths EEE, EEEE, EEEEE and EEEEEE in sizes 5 through 13.

Inclusion Daily Express Inclusion Daily Express is the world-wide email news service that reports on disability rights and the exciting movement toward full community inclusion and self-determination.

Inclusion.com Inclusion.com is about creating and sharing tools, ideas, resources so we can all live full lives. Inclusion.com is for citizens, educators, human service workers, teachers, families, individuals, organizations.

ISAAC ISAAC(TM) is a patented, powerful, fully individualized cognitive prosthetic system specifically designed for individuals with a wide range of cognitive disabilities. It allows for the organization and delivery of individualized procedural and personal information and prompts, assisting the user to live and work more independently.

Institute on Independent Living The Institute on Independent Living serves self-help organizations of disabled people who work for equal opportunities, self-determination and self-respect. They offer training materials, technical assistance and information on personal assistance, advocacy, access, legislation and peer support.

James Stanfield Company offers videos on school to work transition, work skills, daily living and social skills, relationships and sexuality, and conflict resolution.

Job Accommodation Network (JAN) The Job Accommodation Network (JAN) is a general resource on work and disability. It is not a job placement service, but does provide an extensive page of links to private and government sites to assist both recruiting and job searches.

J. P. Das Developmental Disabilities Centre J. P. Das Developmental Disabilities Centre in Alberta, Canada has resources on developmental disabilities research, inclusive education, abuse, and resources for parents and teachers.

Kennedy Krieger Institute The Kennedy Krieger Institute is an internationally recognized facility dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research, and professional training.

Kids As Self Advocates (KASA) Kids As Self Advocates (KASA) is an organization created by youth with disabilities for youth to educate society about issues concerning youth with a wide spectrum of disabilities and special healthcare needs.

Kids Together Kids Together is a non-profit agency that provides information and resources to children and adults with disabilities. Their mission is to promote inclusive communities where all people belong.

Laureate Learning Systems creates software for children with disabilities, specifically to help with language development.

Love and Learning Love and Learning is a series of resources designed to help your infant or toddler with special needs with reading and language development.

Marblesoft is a computer developer of educational software programs for preschool, early elementary and special education.

Martha Lloyd Community Services Located in Pennsylvania, Martha Lloyd Community Services provide a year-round residential program, adult day care services, vocational training and work experiences for men and women with intellectual and developmental disabilities.

May We Help We are a non-profit company making, modifying, and repairing assistive devices for persons who are disabled.

Mealtime Notions Mealtime Notions was created to provide mealtime support for parents and professionals who feed infants and young children with special feeding challenges.

MUMS MUMS is a national Parent-to Parent organization for parents or care providers of a child with any disability, disorder, chromosomal abnormality or health condition.

National Association for the Dually Diagnosed is an association for persons with developmental disabilities and mental health needs.

National Association of State Directors of Special Education, Inc. The National Association of State Directors of Special Education, Inc. (NASDSE) promotes and supports education programs for students with disabilities in the United States and outlying areas.

National Center on Secondary Education and Transition (NCSET) The National Center on Secondary Education and Transition (NCSET) coordinates national resources, offers technical assistance, and disseminates information related to secondary education and transition for youth with disabilities in order to create opportunities for youth to achieve successful futures.

National Down Syndrome Congress It is the mission of the National Down Syndrome Congress to be the national advocacy organization for Down syndrome and to provide leadership in all areas of concern related to persons with Down syndrome. In that capacity, NDSC will function as a major source of support and empowerment to persons with Down syndrome and their families.

National Disability Institute The mission of National Disability Institute is to build a better economic future for Americans with disabilities. Through the power of collaboration with federal agencies, major corporations, financial institutions and nonprofit organizations, NDI has brought new attention to the possibilities of economic empowerment.

National Down Syndrome Society The National Down Syndrome Society supports young researchers seeking the causes of, and answers to, many of the medical, genetic, behavioral and learning problems associated with Down syndrome; sponsors internationally renowned scientific symposia; advocates on behalf of families and individuals affected by this condition; provides information and referral services through its toll-free number; and develops educational materials, many of which are distributed free of charge.

National Professional Resources, Inc. The mission of NPR is to provide resources to ensure that learners of all ages, with differing abilities and at risk, will reach their maximum potential and will meet national, state and local standards.

National Rehabilitation Information Center (NARIC) The National Rehabilitation Information Center (NARIC) has collected and disseminated the results of federally funded research projects. NARIC’s literature collection, which also includes commercially published books, journal articles, and audiovisuals, averages around 200 new documents per month.

New England Village Located in Massachusetts, New England Village is a unique and vibrant community for adults with intellectual and developmental disabilities.

Norm and Emma Norm and Emma speak to anyone who will listen to them on the subjects of disability, inclusion, self-advocacy, self-determination and more. Their website also provides resources on disability-related issues.

Office of Special Education and Rehabilitative Services (OSERS) The Office of Special Education and Rehabilitative Services (OSERS) is committed to improving results and outcomes for people with disabilities of all ages. In supporting President Bush’s No Child Left Behind agenda and the New Freedom Initiative, OSERS provides a wide array of supports to parents and individuals, school districts and states in three main areas: special education, vocational rehabilitation and research.

Parents, Let’s Unite for Kids (PLUK) PLUK (Parents, Let’s Unite for Kids) is a Montana statewide parent organization that provides support, resources, and training to families who have children with special needs and the professionals who work with them.

Pathfinder Village Located in New York, Pathfinder Village is a welcoming residential community in Central New York dedicated to children and adults who have Down syndrome.

PEAK Parent Center The mission of the PEAK Parent Center is to ensure that children, youth, and adults with disabilities lead rich, active lives and participate as full members of their schools and communities by providing training, information, and technical assistance, including best practices, to families and the professionals working with them.

Phonics Phone The Phonics Phone is a teaching tool that helps children hear the words they say. When you speak, your words project forward toward the person or persons to whom you are talking. And that’s great for conversation, but not ideal for listening to yourself.

Precision Academics Precision Academics provides effective and affordable adapted educational programs for children with a wide range of special learning needs.

Prep Program The PREP Program is a school and resource centre serving individuals with Down syndrome, their families, and their educators. The primary “raison d’etre” is the provision of affordable speech-language therapy services to children ages 12 months to 18 years. PREP’s mandate has expanded over the years to encompass a spectrum of support services for successful inclusion of children with Down syndrome in their home, school and community life.

Presidential Task Force on Employment of Adults with Disabilities The Presidential Task Force on Employment of Adults with Disabilities created http://www.disAbility.gov to provide one-stop online access to resources, services, and information available throughout the Federal government.

Professional Fit Clothing Professional Fit Clothing provides adaptive clothing and apparel for individuals with disabilities.

Program Development Associates Program Development Associates offers over 200 resources on Disability training and multimedia solutions from the experts on Disability Awareness, Advocacy, Developmental and Learning Disabilities, and Special Education. PLUS Physical Disabilities, Mental Health, Assistive Technology and Vocational Rehab.

Project Lifesaver Project Lifesaver is a rapid response partnership with law enforcement aiding individuals with Alzheimer’s disease and other disabilities, such as Down syndrome.

Project Participate Project Participate provides families, educators, administrators and therapists with simple strategies to increase the active participation of students with disabilities in school programs. Supported by a U.S. Department of Education grant (H324M980258), Project Participate facilitates team collaboration and promotes the appropriate uses of technology in the classroom.

School Psychology Resources School Psychology Resources researches learning disabilities, ADHD, functional behavioral assessment, autism, adolescence, parenting, psychological assessment, special education, mental retardation, mental health, and more.

Scholarships and Financial Aid for Students with Disabilities  AffordableColleges.com’s mission is to help you earn your degree without taking on thousands of dollars in debt. Their site is a free resource designed to help everyone address the costs of college while pursuing their goals. They can show you the path to a reasonably priced higher education.

Sensory Resources Sensory Resources offers resources for raising children sensory-motor, developmental, and social-emotional challenges.

Sign2Me teaches parents how to empower their babies as young as eight months old with expressive communication skills.

Slater Software, Inc. Literacy and Communication Products Adapted for Special Needs.

Smart Crosswords Smart Crosswords is an outgrowth of the Love and Learning technique which was originally developed for our daughter with special needs to help her with language and reading skills.

Special Fit Clothing Clothing line for adults with Down syndrome. The clothing is designed with larger necklines, shorter arm lengths, more ease in the midsection, and shorter pants inseam.

Special Needs Advocates for Parents (SNAP) The mission of SNAP is to provide information, education, advocacy and referrals to families with special needs children of all ages and disabilities.

Special Needs Stop Special Needs Stop directory is a starting point for individuals to gather information in regards to national and state organizations providing services for individuals with special needs and/or disabilities and their family members.

Special Olympics The mission of the Special Olympics is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for individuals with intellectual and developmental disabilities by giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy and participate in a sharing of gifts, skills, and friendship with their families, other Special Olympics athletes and the community.

Special Reads for Special Needs Special Reads for Special Needs produces full-color picture books uniquely formatted for children with special needs. Large type, special features for quick reading success. Packaged with oversized flash cards.

Time Timer LLC Time Timer LLC is taking the idea of a simple, visual depiction of elapsed time and turning it into a line of products that helps solve time perception problems.

Training Resource Network, Inc. Offering resources on the full inclusion of persons with disabilities in their communities.

Trips Inc. Special Adventures Trips Inc. Special Adventures provides travel outings to adults of various abilities in a safe, respectful and fun atmosphere. Our trips are designed for people with developmental disabilities and special needs who require staff assistance for a safe and enjoyable vacation.

Turtle Books TURTLE BOOKS fill the missing gap in children’s literature. Now you have easy-to-read books that honestly talk about what it’s like to be a child with a disability. Warm, colorful illustrations and simple, beautiful stories offer insights in dealing with children who have physical and mental disabilities.

Uno Mas! Down Syndrome Online Celebrates the uniqueness of people with Trisomy 21. Join this active group of online friends to learn more about living with a little something extra. A great site!

Waisman Center The Waisman Center is dedicated to the advancement of knowledge about human development and developmental disabilities throughout the lifespan. The focus of their activities is on advancing and disseminating knowledge about developmental disabilities and neurodegenerative diseases through research and community outreach.

WatchMinder The WatchMinder is an assistive device to help people with disabilities. It can be programmed as a medication reminder for individuals. The watch is also useful for learning independent living skills.

Woodbine House publishes The Special-Needs Collection, sixty books on disabilities and related topics including AD/HD, autism, cerebral palsy, Down syndrome, fragile X syndrome, learning disabilities, spina bifida, early intervention, inclusion, special education, and more.

Wrightslaw Provided by Pete and Pam Wright, this site contains excellent, informative information about effective advocacy for children with disabilities. The site includes hundreds of articles, cases, newsletters, and other information about special education law and advocacy in the Wrightslaw

Advertisements